This is the first paragraph… but I’ve written it last. Weird, right?
It’s taken me a week to put this together – not because there is anything in here that is amazingly informative or stunningly interesting. It’s because it has been hard to put into words. I never thought I would find it so difficult to ‘speak my mind’. But here I am.
There may be triggers in here… so please tread carefully if you are a sufferer. I’ve tried to do this ‘clinically’.. without too much extra. That’s difficult in itself for someone like me who is an empath and tends to be rather emotional. Here goes the explanation of absence… although I am determined to do better…. to at least try…. and there’s a lot to be said for that.
PTSD. C-PTSD. CFS.
A lovely bunch of acronyms. Not. I’ll break them down for you…..
PTSD : POST TRAUMATIC STRESS DISORDER
A disorder characterised by failure to recover after experiencing or witnessing a terrifying event.
The condition may last months or years, with triggers that can bring back memories of the trauma accompanied by intense emotional and physical reactions.Symptoms may include nightmares or flashbacks, avoidance of situations that bring back the trauma, heightened reactivity to stimuli, anxiety or depressed mood.
C-PTSD : COMPLEX POST TRAUMATIC STRESS DISORDER
Complex post-traumatic stress disorder (complex PTSD, sometimes abbreviated to c-PTSD or CPTSD) is a condition where you experience some symptoms of PTSD along with some additional symptoms, such as:
difficulty controlling your emotions
feeling very hostile or distrustful towards the world
constant feelings of emptiness or hopelessness
feeling as if you are permanently damaged or worthless
feeling as if you are completely different to other people
feeling like nobody can understand what happened to you
avoiding friendships and relationships, or finding them very difficult
often experiencing dissociative symptoms such as depersonalisation or derealisation
regular suicidal feelings.
CFS : CHRONIC FATIGUE SYNDROME
Chronic fatigue syndrome (CFS) is a complicated disorder characterized by extreme fatigue that lasts for at least six months and that can’t be fully explained by an underlying medical condition. The fatigue worsens with physical or mental activity, but doesn’t improve with rest.
Other characteristic symptoms include:
Sleep that isn’t refreshing
Difficulties with memory, focus and concentration
Dizziness that worsens with moving from lying down or sitting to standing
In the past month, I have had my fair share of medical professionals : Vet, Dentist, Doctor, Psychologist. And I even bumped into the Pfizer rep that I knew from my days of working for a doctor, so there was her too 😉
I knew I had PTSD – related to trauma from 2012. What no one told me is that it can last years… and that when you think you’re ‘over it’, it can come back. The focus was on the 2012 trauma – I have recently discovered that the situation and numerous occasions of abuse when I was married had me already living with PTSD, just not knowing.
This past month, after two years of undergoing blood tests and x-rays, the conclusion that has been drawn is that I have all three of the above. Wait, what? (The only thing missing has been an MRI – so the conclusion is based on evidence and investigation sans that.) This is all just ‘diagnosis’ though. I accept that they’re all educated and know better than me. I accept their diagnosis. This doesn’t mean that I won’t question though… or fight against it… or try and determine otherwise. Stubbornness has it’s advantages 😉 and so does being so focused on hope! 😉
I have never fully understood when people have said to me, ”I just can’t explain it.” I do now.
But we are all different. And respond differently. And as I have researched and read up, and begun ‘unpacking my mind/debriefing’, I have been made even more aware of how different we all are, and how differently we respond.
I can’t walk you through it all… I am only just starting this journey, as such, and am still walking through childhood. Sigh.
And it’s hard. And I am so tired.
(Although the psychologist says I need to stop saying the word tired. Tired can be solved through sleep and rest. Fatigue cannot.)
What I can say for now is this : I am an empathetic and compassionate individual. But this has taken me into a whole new level of understanding and compassion. I hurt for people who are suffering from these things and are doing it alone because people don’t know or comprehend what it is and how much damage it actually does. I hurt for people who have been, and are being judged, because of what is seemingly their actions, and supposed bad choices.
I hurt because I am one of those people. And I wish my arms were wide enough and big enough to stretch over the entire world of those people, so that I could just hold them. Because I know that there is a part of me that just wishes to be held for a while.
I will also say this : my response to all of this has been a little strange. There is an acceptance without affect. My brain is saying,
”Okay fine. They say you have this. It sure explains a lot, and you need to now stop being so hard on yourself. It’s happened. ”Stuff” has happened. You can’t change it, and you can’t change the people who inflicted the hurt and put their issues on you. You can’t take back the reactions and choices you made as a result. So let’s do what we need to, even when it hurts and when it’s hard…. but let’s also figure out how NOT to let it affect every part of your life in a negative way.”
I think it’s that ‘prisoner of hope’ attitude of mine that I now think was developed many years ago to protect my peace in some way. I’m not entirely sure. But I feel like it might have been. And as much as I want to wake up in the morning, and pull the blankets back over my head and just stay like that all day, until the next day… I can’t. And that in itself causes me confusion.
Something else that has me confused….
I can understand why people who suffer feel the way they do. 😦 I am confused as to why I don’t feel the same way.
According to the psychologist, and almost every support group forum I have visited, a vast majority express the ‘suicidal feelings’ symptom. Not always in the way that they would actually DO something… but in a way where they say : ”I just want to die. I pray for God to take me. I just want it to be over.”
Yes, I want the ‘bad feelings’ and the days I struggle to be over and gone. I don’t want to wake up after a good nights rest ‘tired’. BUT I don’t want to die. My strongest desire is to still LIVE, despite this. To find ways for life to go on, and have meaning, and be fruitful, even when I am fatigued and struggling. See? That prisoner of hope thing again, I guess.
I am not medicated. I have opted instead for vitamins, and a herbal supplement aimed at anxiety and stress. This is NOT to say that the variety of medications to treat these acronyms are useless. In fact there is a strong possibility that some form of ‘chemical help’ would benefit me. But this is part of MY issue – a mental block of sorts when it comes to ‘medication’. A part of the past from childhood that is being unpacked.
I share all of the above for two reasons.
The first is to create an awareness of sorts. Because I know this from personal experience : sometimes when something doesn’t directly affect me, I don’t really take the time to learn about it. For example : MS (multiple sclerosis) is not something that has affected anyone I know personally. And so although I know what it is, I have never really delved into it. So I am aware of what it is, but clueless as to the way it impacts someone’s life… and the lives of those around them.
The second reason is this : I value each and every one of my regular readers and followers. (And even those who just pop by for a specific post have meaning to me.) By having my personal blog – and making it so very personal because of the way I am – I have invited and allowed each of you to become ‘part of my world’. And although many of you don’t require an explanation, I needed to tell you – for me. I love connecting with people (another symptom I seem to defy) and part of that connection is honesty and baring a part of my soul, I guess.
So there’s my mind, and soul… slowly unpacking. Apologies for the lengthy post. If you’ve read it all, thank you. ❤